I started this blog in order to talk about, and inspire myself to strength train with inflammatory arthritis. Unfortunately, not long after I launched this blog I started dealing with complications from medications and this has prevented me from training. Boy am I frustrated!
Before my nasty flare this fall I had a really bad bout of depression. I saw my Doc, he started me on Lexapro, it worked, and he referred me to a psychiatrist to make sure I was on the right medication and dose. The psychiatrist doubled the medication I was on and things got better. Until my flare in October and I began seeing a rheumatologist as well. A couple months after the flare, the toxic situation I called a “job” reached critical mass and my boss was either going to find reasons to fire me, or I could go quietly and take a lay-off. Yes I was physically sick, yes they knew, yes they didn’t give a shit that I had seniority and shouldn’t be anywhere near the first 15 laid off, and yes they didn’t care that they were putting me out in the cold with zero health insurance, “…you’ll get the option for COBRA coverage” at $700 a month *rolls eyes*. I left them to Karma in all of her righteous glory. And by “they” I don’t mean you Tyson.
The last couple weeks that I had insurance, (I was laid off the day after Christmas. Karma do you hear this?), I saw all of my providers. The psychiatrist switched me to a generic antidepressant so that I could afford it (Celexa), and my rheumatologist put me on Plaquenil in order to help manage my joint pain, body aches, and low-grade fevers so I could function. Unfortunately these medications were started a day apart which makes tracing symptoms to them difficult. None of us considered this problem at the time.
Fast forward two weeks when a rash develops and the spreads all over my thighs, abdomen, chest, undersides of arms, and begins creeping toward my back. Benadryl every four hours doesn’t prevent the spread. Eventually I end up in the ER in great concern. My rheumatologist’s nurse blames the antidepressant because I just doubled the dose per instructions, and the psychiatrist claims that a rash from Celexa is extremely rare. The ER Docs work their magic and shoot me up with epinephrine, steroids, and pepcid, (which apparently is the antihistamine partner to Benadryl -learn new stuff every day!), this cocktail gets me twitching like a crack whore who’s hasn’t slept in a week. After the dust settles I’m off both medications effective immediately and recovering from the rash and the epi/steroids. The rash completely resolves within a day.
So this is where things get difficult, if you can believe that. It turns out that withdrawing from antidepressants can really put a damper on your day…or week. It’s all over the internet, with multiple programs to help patients wean off of them. The days following my ER experience I was spaced out, jumpy, and fatigued. I figured, “Hey, I’ve had a lot of heavy medications in my system, I just need a few days to get back to normal.” A few days later I was experiencing the same symptoms with the lovely additions of dizziness and sudden episodes of nausea. -Oh and having been of Plaquenil my joint pain, low-grade fever, and body aches were back too. Can’t a girl catch a break?!
So this is where I’m at. I am experiencing all of these symptoms and fearful because I no longer have health insurance to pay professionals to sort me out. I also wonder how long the withdrawal symptoms will go on, and if I’m psychologically healthy enough to be off antidepressants yet.
I’m working on a plan, sort of. The wonderful healthcare system that my rheumatologist works for is willing to take me as a charity case. I am grateful for this, truly, but I still must pay for medications out of pocket and right now unemployment is willing to give me $250 a week. Half of my monthly income will go to rent. 7/10s to personal bills before even considering house bills. I’m hoping for another generic medication when I see my rheumy again, one that i can afford because being off an arthritis medication doesn’t seem to be an option at all right now. Not if I want to be functional.
But I’m here. I’m kicking. I may not be strength training this week because it doesn’t seem safe, but I’m interviewing for jobs, doing my school work, volunteering, finishing some house chores, and planning a future veggie garden. I’m coping, even on the days I cry, and I have to believe that I’m moving forward.
-Guess I’m psychologically healthy enough! What a relief!